Friday 5 August 16
The 2016 Chromosome 18 Europe conference in Rome opened on Friday 6th August with a session by Janet Garney from Us in a Bus. It’s the first time that the Family conference has run over three days.
10.00 – 12.00 am Us in a Bus http://usinabus.org.uk/
Workshop outline:
10.00 Introductions
10.15 Introduction to the basic principles of Intensive Interaction
11.05 Video – ‘Learning the Language’ by Phoebe Caldwell
11.35 Trouble shooting – pros and cons of this approach
12.00 Conclusions and handouts.
2.30 – 5.00 pm Training face to face Us in a Bus
2.00 – 6.00 pm Registration table open (will also be available on Thursday the 4th from 5.00 pm)
7.00 – 9.00 pm Welcome from committee members, recognitions/ rewards
Saturday 6 August 16
9.00 – 9.15 am Welcome and introduction by Jannine and Dan
9.15 – 10.30 am Presentation by Jannine and Dan
10.30 – 10.45 am Break
10.45 – 11.45 am Music Therapy with Nordorf Robbins
11.45 – 12.45 am Launch of European Research Centre
12.45 – 2.15 pm Lunch
2.15 – 3.00 pm Roadmap to full potential: Parents of adults 0-18 experiences
Short break then;
3.00 – 5.00 pm Syndrome breakout groups:
- 18q,
- 18p,
- Tetrasomy 18,
- Trisomy 18,
- Ring 18,
- Pitt Hopkins
- Grandparents
5.00-6.15 pm
7.00 – 9.00 pm Dinner (Chromosome 18’s Got Talent Show during dinner) followed by disco.
Sunday 7 August 16
9.00 – 9.45 am AGM
9.45 – 10.45 am Dr Vizziello – Sleep Disorder and roundabout to face family disorganisation.
10.45 – 11.00 am Break
11.00 – 11.45 am Dr. Patelli – Communication and speech therapy
11.45 – 12.45 am Self advocates Panel
12.45 – 2.15 pm Lunch
2.15 – 3.00 pm Siblings panel
3.00 – 4.00 pm Wrap up