Eve is our first self-advocate on the podcast and in the interview we chat about her life and work.
Podcast 5: Parent Story from one of our founding members Bonnie McKerracher
Bonnie is one of the founding members of Chromosome 18 Registry and Research Society (Europe) and in this episode she tell us of her story about her daughter Kathryn who is affected by 18q-.
Bonnie is one of the founding members of Chromosome 18 Registry and Research Society (Europe) and in this episode she tell us of her story about her daughter Kathryn who is affected by 18q-.
Podcast 4- Parent Stories: Sara Jackson
This is the first in our Parent Stories, series where I interview Sara Jackson who is one of the management committee members.
This is the first in our Parent Stories, series where I interview Sara Jackson who is one of the management committee members.
COVID-19 Home Schooling Webinar
This, our first, webinar was a great success and many thanks to Claire Harrison from CALL Scotland and Paul Seeman for their help and providing so much good advice and links to a whole range of resources that will be a great help to all of us trying to give our kids some home schooling.
This, our first, webinar was a great success and many thanks to Claire Harrison from CALL Scotland and Paul Seeman for their help and providing so much good advice and links to a whole range of resources that will be a great help to all of us trying to give our kids some home schooling.
COVID – 19 Home Schooling Webinar, 15th July @7:30pm
From your responses to the questionnaire about how you are coping with COVID-19 the number one request for help was help with home schooling. Therefore we are going to run a webinar on the 15th July @7:30pm about home schooling.
From your responses to the questionnaire about how you are coping with COVID-19 the number one request for help was help with home schooling. Therefore we are going to run a webinar on the 15th July @7:30pm about home schooling.
Chromosome 18 Europe 6th BiAnnual Conference 24th-26th July 2020 (Booking Info)
LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and…
LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and…
Sunflower Lanyard Scheme
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…
Posted in 2019
Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their…
European Commission approves 23 European Reference Networks
On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).
Posted in News
On 15th December the Board of Member States of ERNs voted to approve all 23 ERN proposals submitted under the first wave (the 24th proposal, submitted under the 2nd call, will be assessed early in 2017).
October 2016 Newsletter
November 2016 newsletter with lots of exciting news from the conference and our amazing families.
November 2016 newsletter with lots of exciting news from the conference and our amazing families.
Fundraiser Extraordinaire!
Eve Rushmer, one of our amazing Self Advocates, celebrated her birthday by doing a Skydive in aid of Chromosome 18 Europe.
Eve Rushmer, one of our amazing Self Advocates, celebrated her birthday by doing a Skydive in aid of Chromosome 18 Europe.
