Join Us – English


Membership is free - Please complete the form below.

First Name (required)

Last Name (required)

Your Date Of Birth (required)

Your Email (required)

Building Name / Number

Street (required)

Village / City / Town



Preferred Phone Number

Alternative Phone Number

Relationship To The Affected Person (required)
It's meParentRelativeLegal GuardianFriendClinicianResearcherEducationalistOther

Parent Network
Add me / us to the networkDon't add me / us to the network

The Parent Network is a list of names, addresses and emails of parents who wish to communicate with each other. It is only available to members who wish to join the network.

Affected Person

First Name (required)

Last Name (required)

18p-18q-Ring 18Trisomy 18Tetrasomy 18pOther

Other Syndrome

Affected persons Date Of Birth (required)


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