The 5th Chromosome 18 Europe Family Conference is taking place in the Doubletree Hilton Glasgow on June 22-24, 2018.
Funds are tighter than ever before, but just as at our first conference in 2010, getting together will be the real benefit of all the fundraising you are doing to bring us all together to laugh learn and play.
Thank you to everyone who has worked and is working so hard to raise the funds we need to run an inclusive, informative conference.
The conference will start on Friday morning, and crèche and Sibs4Sibs registration forms will come out at the same time as conference registration forms.
Conference programme
Friday am
9.30 – 10.00
Introducing Jonathan Rugman and Isabel Rushmer: Sibs4Sibs – not just fun and games
10.00 – 10.45
Clarissa Martin, Consultant Clinical Psychologist (Specialist in Feeding Disorders). Clarissa will be available to speak to individuals during the day.
11.00 – 11.45
Donna Tomlin, Contact: how we work, support and bring families together– through our resources, helpline, events, working with support groups and campaigning.
11.45 – 12.30
Tracey Francis, Contact: Preparing Parent Carers for Transition
Lunch together in the hotel
Friday pm
2.00 – 3.00
Creative Therapies 3 sessions of Art Workshops for Self Advocates and Sibs : All about ME!
2.00 – 3.00
Charlene Tait, Director of Autism Practice and Research at Autism Scotland: Practical Strategies to support Executive Functioning across the lifespan.
3.30 – 5pm
Syndrome Breakout sessions
Dinner at your own expense
lots of places to choose from on the doorstep. Check out the discounts available through Groupon via www.easyfundraising.com: Chromosome 18 Europe gets a small donation, and you save money on local restaurants! There are several supermarkets close by too for in-room picnics.
Saturday am
Janet McLachlan, Nordoff Robbins Music Therapy sessions for groups of SAs
9.00 – 9.45
Kate Reynolds: PUBERTY: when, what and how. Kate will speak early so that she will be available for individual advice throughout the day.
9.50 – 10.50
Andrew Farquharson, BetterMe Approach: Emotional Intelligence: the ability to identify and manage your own emotions and the emotions of others. This is a challenge for many children and adults affected by Ch 18 disorders. Andrew will go on to deliver workshops for groups of self advocates
11.00 – 12.30
Dr Jannine Cody and Dr Dan Hale, Chromosome 18 Research Centre, Texas: Research Update
Lunch together in the hotel.
Saturday pm
2.00 – 2.45
Prof. Richard Davison: Chromosome 18 Europe Research Report
2.50 – 3.30
Cheryl Donlan, Fundraiser Chromosome 18: Ways to Raise for Chromosome 18 Europe
3.45 – 4.30
Katharine Newman, mum of Marianne: how to use the internet to find support in your area, not only in the UK. Bring your own laptop!
Sara Jackson, mum of Louis: the Treehouse at Number Nine
Free time before evening dinner and disco
Sunday am
8.45 – 9.15
AGM
9.25 – 9.50
Marie McQuade: Fundraising ideas for all, great and small
10.00 – 11.00
Self Advocates Panel of adults affected by Chromosome 18 disorders
11.15 – 12.00
Siblings Panel
Sunday pm
1.30 – 3.00
Panel of Parents of Self Advocates
Conference Closes 3.15
Fun(ding) Facts:The amazing crèche will cost up to £9,000 for three days, based on the numbers, ages and stages of the children we welcomed in Manchester. Safety and security are as always top priorities, with a high staff: children ratio to ensure plenty of fun for all. Translation services cost approximately £10,000, and we’re glad to welcome European families who can come and get access to all of the presentations because we pay for those services. Conference Registration fee actually covers less than one day delegate rate charged by the hotel. The generosity of our friends and families who work hard to raise funds covers the rest, so that as many families as possible can come together with the least amount of financial stress. A Grandparent has offered to sponsor music therapy because she believes in the importance of it. |
