Conference programme finalised

The conference programme is now finalised

Posted in 2016, Conference

Draft conference schedule

The initial conference schedule has been published.

Posted in 2016, Conference, Events, News

European Conference Update

Welcome to our new and improved website everyone. Your committee are working hard to put the plans in place for the 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. This year again we

Posted in 2016, Conference

Rome conference

The 4th Family Conference is taking place in Rome over the weekend of August 5th to 7th 2016. Below is a link to allow you to book rooms in the hotel and a code to add in order to get our special rate. The

Posted in 2016, Conference, News

Rome confirmed as venue for our 4th European Summer Conference

The fourth Chromosome 18 Europe conference will take place in Rome on the 5th, 6th and 7th August. The venue is the Rome Marriott Park Hotel. More details will be available over the next few weeks.

Posted in 2016, Conference, News

European Conference 2014 Photographs

All the photographs can now be found in this image gallery. Thanks to Cheryl Donlan, her family and friends and staff at the Novotel Manchester West – oh, and the weather – the third family conference of Chromosome 18 RRS

Posted in 2014, Conference

Milan Conference 2012

Milan Conference 2012 Written by Bonnie McKerracher Sunday, 05 August 2012 23:21 The conference is over: other people are better placed than I  am to say how successful it was. What I know for sure is that I spent time

Posted in 2012, Conference

European Conference 2012 Visitor Book and Feedback Page

European Conference 2012 Visitor Book and Feedback Page Written by Administrator Sunday, 05 August 2012 09:31 Now that the conference is over, it would be great to have you check in to say you were there, and better still, if

Posted in 2012, Conference

European Conference 2012 Blog

European Conference 2012 Blog Written by Tony Russell Thursday, 02 August 2012 22:23 This is the live blog from the European Conference 2012 in Milan. Registered team members can login through the panel on the front page and blog live.

Posted in 2012, Conference

The Wall Ultra Run 2012

On the weekend of 23 and 24 June 2012, I set out on a 69 mile run to raise awareness and funds for our charity.  This is my story. The Wall Ultra Run. 69 miles. On Saturday morning, 23 June,

Posted in 2012, Events, News