Podcast 6: Interview with Eve Rushmer

Eve is our first self-advocate on the podcast and in the interview we chat about her life and work.

Posted in 2021, News, podcast

Podcast 5: Parent Story from one of our founding members Bonnie McKerracher


Bonnie is one of the founding members of Chromosome 18 Registry and Research Society (Europe) and in this episode she tell us of her story about her daughter Kathryn who is affected by 18q-.

Posted in 2021, News, podcast

Podcast 4- Parent Stories: Sara Jackson

This is the first in our Parent Stories, series where I interview Sara Jackson who is one of the management committee members.

Posted in 2021, News, podcast

Podcast 3 – What it is like to be a sibling – Lexie Davison

We try to provide some information to our members on the 18th of each month and this now includes our podcast. In this episode I am interviewing my daughter Lexie who will be 18 on the 18th Dec and thus

Posted in Uncategorized

COVID-19 Home Schooling Webinar

This, our first, webinar was a great success and many thanks to Claire Harrison from CALL Scotland and Paul Seeman for their help and providing so much good advice and links to a whole range of resources that will be a great help to all of us trying to give our kids some home schooling.

Posted in 2020, Events

COVID – 19 Home Schooling Webinar, 15th July @7:30pm

From your responses to the questionnaire about how you are coping with COVID-19 the number one request for help was help with home schooling. Therefore we are going to run a webinar on the 15th July @7:30pm about home schooling.

Posted in 2020, Events

Chromosome 18 Europe 6th BiAnnual Conference 24th-26th July 2020 (Booking Info)

LATEST INFORMATION We are delighted to open the ROOM BOOKING CODES for the 6th Chromosome 18 Europe Family Conference in the Rome Marriott Park Hotel, Rome, Italy 24/26 July 2020 The conference will start on the Friday and Crèche and

Posted in 2020, Conference, Events

Chromosome 18 Europe Conference 24-26 July 2020 “Living with Chromosome 18”

We are heading back to Rome Dear members and friends.  We are planning some changes to the way we structure our Conference. We will look at potential topics and speakers across the lifespan that takes us from babies to adults,

Posted in 2020

Sunflower Lanyard Scheme

Yesterday on BBC Radio 5 there was significant discussion about this scheme. The scheme started at Heathrow Airport Passengers with Additional Needs/Hidden Disabilities can wear this lanyard or pin to make the staff aware of their hidden disabilities, allowing their

Posted in 2019

2020 Family Conference

Just to let everyone know that we have started the planning for our next conference. Save the date 24-26th July 2020 in Rome. It will be in the same fantastic Marriott hotel as the last time, for those who were

Posted in 2019, Conference Tagged with: ,